Some Diseases Are \u201cRare.\u201d Others Are Just Ignored.<\/p>
When people hear the phrase \u201crare disease,\u201d they often imagine something obscure\u2014one in a million, barely documented, almost mythical.<\/p>
But here\u2019s the uncomfortable truth:<\/p>
Many diseases affecting hundreds of thousands\u2014sometimes millions\u2014of people are only considered \u201crare\u201d because they happen in poor countries.<\/p>
If a disease has a prevalence of over 100,000 people, it\u2019s not rare.<\/p>
It\u2019s underfunded.<\/p>
It\u2019s underdiagnosed.<\/p>
And far too often, it\u2019s overlooked.<\/p>
At Bend Biomedical, we work at the intersection of science, equity, and reality. We focus on diseases that quietly devastate communities in low-income countries\u2014conditions that don\u2019t make headlines, don\u2019t attract blockbuster funding, and don\u2019t promise big returns on investment.<\/p>
Not because they\u2019re unsolvable.<\/p>
But because the people affected are too often invisible.<\/p>
A disease doesn\u2019t become less serious because it affects people with fewer resources. A child\u2019s life doesn\u2019t matter less because they were born in the wrong zip code\u2014or the wrong hemisphere.<\/p>
Yet global research and manufacturing dollars tell a different story.<\/p>
Time and again, diseases with massive prevalence in poorer countries receive a fraction of the funding directed toward conditions affecting wealthier populations. The result? Treatable diseases remain untreated. Preventable deaths continue. Innovation stalls where it\u2019s needed most.<\/p>
We believe biomedical efforts should be guided by impact, not income.<\/p>
That\u2019s why Bend Biomedical supports research, collaboration, and solutions aimed at diseases with high prevalence and low visibility\u2014the ones hiding in plain sight.<\/p>
Because a disease affecting 100,000+ people is not a footnote.<\/p>
It\u2019s a call to action.<\/p>
And because science is at its best when it serves everyone, not just the fortunate few.<\/p>
If you believe global health equity isn\u2019t optional\u2014<\/p>
If you believe prevalence should matter more than profit\u2014<\/p>
Then you\u2019re already part of this movement.<\/p>
_________<\/p>
Available upon request: <\/p>
Articles of Incorporation<\/p>
Bylaws<\/p>
Charitable Pledge Agreement<\/p>
Registration for Charitable Organizations (Oregon Department of Justice), 501c3 Long Application<\/p>
USAID\/Gates Foundation Funding Application<\/p>
Itemized revenue for 2019 (no revenue), 2020 (no revenue), 2021, 2022, 2023, 2024, and 2025<\/p>
Itemized expenses for 2019, 2020, 2021, 2022, 2023, 2024 and 2025<\/p>
<\/p>
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Some Diseases Are \u201cRare.\u201d Others Are Just Ignored. When people hear the phrase \u201crare disease,\u201d they often imagine something obscure\u2014one in a million, barely documented, almost mythical. But here\u2019s the uncomfortable truth: Many diseases affecting hundreds of thousands\u2014sometimes millions\u2014of people are only considered \u201crare\u201d because they happen in poor countries. If a disease has a […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1629","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/pages\/1629","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1629"}],"version-history":[{"count":32,"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/pages\/1629\/revisions"}],"predecessor-version":[{"id":1874,"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=\/wp\/v2\/pages\/1629\/revisions\/1874"}],"wp:attachment":[{"href":"https:\/\/bendbiomedical.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1629"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}